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missCarpone

I can eat chips again!

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

possible support with health expenses

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

First breakfast in 6 months

Gastroparesis is a condition that affects the ability of muscular contractions to effectively propel food through your digestive tract, resulting in delayed gastric emptying. Gastroparesis is typically diagnosed via a gastric emptying study (GES) and is thought to be a condition belonging on a spectrum shared with functional dyspepsia (FD) rather than being a totally separate disease. See the Megathread for more info and join our Discord today (link in comments).

missCarpone

Gentle exercise tip

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Yay, I'm clean!

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For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Improvement in quality of life

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Thank you

Gastroparesis is a condition that affects the ability of muscular contractions to effectively propel food through your digestive tract, resulting in delayed gastric emptying. Gastroparesis is typically diagnosed via a gastric emptying study (GES) and is thought to be a condition belonging on a spectrum shared with functional dyspepsia (FD) rather than being a totally separate disease. See the Megathread for more info and join our Discord today (link in comments).

missCarpone

Improving

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For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Pacing Card Set available in Germany

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For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Documentary "Doctors as patients" (with ME/CFS)

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Good news

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For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

What, exactly, is a "safe" food?

Gastroparesis is a condition that affects the ability of muscular contractions to effectively propel food through your digestive tract, resulting in delayed gastric emptying. Gastroparesis is typically diagnosed via a gastric emptying study (GES) and is thought to be a condition belonging on a spectrum shared with functional dyspepsia (FD) rather than being a totally separate disease. See the Megathread for more info and join our Discord today (link in comments).

missCarpone

PT and pain vs. Pacing and being crippled

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Conundrums, looking for support

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Need help with phrases of self-compassion for myself

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Anyone been on DXM for weeks or months and then come off it?

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

To very severe people: Do you ever wash/ shower and if so, how?

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Clueless

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Anyone hear an internal sound like a flag fluttering really quickly?

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Can medical marijuana give you bad trips

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

How do you know you're getting better?

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Ppl 100% bedbound who recovered to some degree, how did you muscle get back to standing, walking?

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

New Year's Eve fireworks - how do you deal/protect ys?

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Please advise: Unable to eat for 3+ weeks (scared already, plz no additional scary stuff)

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.

missCarpone

Me/CFS specialist did bedside visit

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.