I absolutely cannot get better.

I was visually diagnosed with LS in Nov after a year of burning stinging tingling itching and redness. Lots of inflammation. I have zero white patches or any other signs of LS besides redness and inflammation.

I’ve been on daily clob since Nov 14. That’s almost 10 weeks.

I’ve seen little improvement. Actually last week was the first week I had maybe 4-5 days symptom free and I felt so positive I was finally recovering. The past 4 days have been hell. Square one level hell.

I’ve also been on 50mg nortriptyline for a month now which is for suspected nerve pain.

I know I need to get a biopsy.

Please someone help me I am at my wits end.

I’m 31 F and I want my life back. If I do have LS I cannot determine my triggers. In the last few weeks I due attempt sex a couple of times as it’s never really painful for me. I don’t know if this is slowing my recovery. I’ve tested negative for every possible infection, I use topical estrogen and do all the other things… cotton underwear, loose clothing, free and clear, no soap.

This is impossible.

I have a follow up on Feb 14 which will be 3 months since my diagnosis.