Help! Has anyone got stranded in the gap between emergency care and outpatient consults?

Backstory: diagnosed with POTS 2019, but symptoms very easy then. Had a HUGE unexplained attack a year ago which worsened everything and still waiting for explanations (7 months to go for consult…) but was at least managing to get around slowly a few weeks after.

Had another huge attack out of nowhere a month ago. A&E, sent home told to see gp. Collapsed at A&E entrance again 3 days later, but made to sit (ended up lying on the floor for 8 hrs as I couldn’t breathe sitting…), sent home again. Another attack 2 weeks later, another A&E, sent home again.

Instead of recovering slowly, it has worsened daily. I can’t sit up to eat, can barely walk to the bathroom. I had to crawl along the hall for water. I’m scared every day when I can’t breathe properly and get chest pains, or can’t stand, or my ox reading goes low. But my GP just sends me back to A&E and A&E send me home to my GP?!

It feels like I’ve now deteriorated too much to get to the outpatient appointments to get some answers and ever function again. Even sitting up and talking for a video call is too hard. But hospital won’t admit me even if I called 111 and went in by ambulance again, and doesn’t have consultants I’d need around anyway (admission last year was scary - general ward doc kept giving meds I shouldn’t take…), and GP won’t help at all, and cardiology doesn’t seem to have emergency consults.

In desperation I booked a private consult (not that I can afford tests he’ll want…) weeks ago, but I’m now too far gone to travel to London for it, so it’s probably not an option now 😒

So is this it? Tough luck, didn’t survive the waiting list, that’s just how it goes for some people, RIP?

Any ideas (UK) very welcome!! 🙏