Those with venous sinus stenosis, how did affect you during pregnancy?
I have venous sinus stenosis, but no IIH. I’ve lost almost 40lbs since diagnosis but no improvement in my PT in my right ear. Especially when I’m sick. Ive had a neuro ENT do every test under the sun and they cannot find anything and say I have perfect hearing, but my neurologist sees this severe VSS. However my neurologist has no idea how pregnancy will affect the symptoms.
I’m trying to avoid the stent but right now I’m sick and my ear throbbing/PT is quite impairing. I’m so scared if I get pregnant it’ll keep getting worse. I also don’t understand how the vein doesn’t completely close off, or can’t?
I hate this.