advice for living with N1 before diagnosis

I am waiting on my appointment with the sleep neurologist and from there will likely get my MLST scheduled. I am confident I have narcolepsy type 1. However, I know it is going to take a while for all the testing and results to confirm that and to find the medicine that works. In the meantime, does anyone have advice on how to function without prescriptions? I just drink coffee right now, I'm in therapy, and have tried napping but I rarely feel like I'm "living" if that makes sense. Any advice is appreciated!