Diagnosed with Factor XI deficiency (Hemophilia C)
Recently found out I have Factor XI deficiency at 28 after getting my wisdom teeth out. Recovery was tough—lots of bleeding and bruising around my neck and collarbone that lasted a while. My Factor XI level is <1, and aPTT is 97, which the hematologist says categorizes my deficiency as severe. Looks like I can still carry on with my regular routine, but I'll need a medical bracelet to wear each day and fresh frozen plasma before any major surgery. Any advice from others with Factor XI deficiency? This is all very new to me.