Did low dose naltrexone help yall?
not seeking medical advice, seeking personal experiences, ty
Slight rant slight questions/personal advice. I have hEDS. My pain management is trying me on LD naltrexone after all the other things weve tried didnt work & had said it works for most of his EDS patients & hopes the same for me, not covered by insurance but atp I genuinely don't care. They put this order in last friday & they have this huge new compounding lab & its now basically nearly friday again & still nothing about it being ready, idk how long compounding takes but this pain has me genuinely losing my mind. Cant do anything I used to do anymore, and I nearly stop breathing from the pain halfway thru a single headlining artist at a concert when I used to be able to last from doors to close. Cant work the same cant take care of the house the same cant hike, cant do anything a normal 26yr old can do. So when I say I cannot comprehend how long this med is gonna take to get to me, my impatience I think is valid, everything hurts, my entire body is always screaming at me.
Aside from the ranting, anyone whos been on LD naltrexone, did it help at least a bit? I just need the pain to leave me alone for 5 seconds, this whole bouncing between meds to find the right thing is hell on earth and i just want to finally land on something that lets me at the very least breathe. Any personal experiences with LD naltrexone welcome, & also if yall have any negative side effects or such id like to know if anyones had any of that as well. Thank you!🙌🫶