Anybody here have alexisoma?
EDIT: title should be spelled "alexisomia"
In autistic circles, alexthymia (the inability to recognize your own emotions) seems to be a far more common thing to discuss. Some studies estimate that at least 50% of autistics have alexthymia.
However, there's WAY less research out there about alexisomia which is the inability to accurately recognize physical sensations such as pain. It's associated with low interoception.
It's harder to test for because I don't think it'd be as apparent except in situations when you're supposed to feel significant pain and you don't. But there's a research study showing that people with alexisomia and terminal cancer are far less likely to request pain relief. My father (who was 100% an undiagnosed autistic) had metastatic bone cancer at the end of his life which is supposed to be excruciatingly painful but felt no pain at all. It totally mystified all his doctors.
As for me, I've given birth twice, and I don't feel any pain until the end. So essentially, my pain goes from 0 to 100. And 100 is felt literally when the baby is basically crowning. Medical professionals have never been able to explain this fully and just said I have precipitous (unusually fast) labors. But that never fully fit because it's not that I'm dilating unusually fast. I just don't feel any pain when I'm at 5 cm when most people are in pretty noticeable pain by then. So I have no sign at that point that I'm in active labor-- but I am. Learning about alexisoma and knowing that I'm autistic (added to the genetic component with my father) makes everything make sense.
Wondering if anybody else can possibly relate to alexisomia? My hunch is that its prevalence level may rival alexthymia in the autistic community, but it's just harder to research.